Jan van Amstel
Informal care to MS patients was last year -and still is in 2024- the central annual theme of the Dutch MS Society. It is an important aspect of inclusion in the society. What is the Dutch experience with informal care? Aspects of informal care will be highlighted: the relationship with employment; laws and regulations; rights; training for informal care; money matters; respite care and a broker for informal care.
I will illustrate my presentation with personal experiences as an informal caregiver, including a lawsuit of my daughter with MS for (partly) support by the local government. She won.